By: Matshediso Selebeleng
Families claim their autistic children received little to no therapy despite paying over R100 000 in fees
Parents of children with special needs have raised serious concerns about the quality of support and therapy provided at Blaze The Sanctuary Autism Education and Support Centre in Bloemfon tein, alleging their children were denied proper care despite paying substantial fees. Rethabile Moleko told Journal News that she spent thousands of rands hoping her daughter would re ceive speech therapy, but nearly two years later, the child still cannot speak, with too few therapy sessions conducted and no report provided on her progress. Moleko enrolled her daughter at Blaze The Sanctu ary Autism Education and Support Centre when she was two years old after noticing delays in her speech development and believing the facility would provide specialised support. At first, she believed the delay may have been linked to the family travelling fre quently when the child was born. However, when the child reached an age where she was expected to begin speaking and still showed no progress, Moleko decided to leave her with her par ents in Bloemfontein, Free State, while she returned to work abroad. According to Moleko, during the time her child at tended the school, she repeatedly requested updates on the therapy sessions and the progress being made. “I requested documentation to confirm that the sessions had actually taken place. I was provided with incomplete handwritten pencil notes, not the professional therapy records one would expect from a therapist.. “She was enrolled at Blaze and was supposed to receive therapy as part of her support plan. She start ed in 2023 when she was two and a half years old. So for nearly two years, that therapy either did not take place or was not properly administered,” she stated. Moleko revealed that when she raised concerns about the lack of proper documentation, she was met with what she described as unprofessional and aggressive responses. “No parent advocating for their child’s needs should be treated like this,” she said. She claims that several people working at the school informed her that her daughter had received therapy fewer than five times in the last two years, despite the family paying full school fees and addi tional therapy costs that amount to more than R100 000 per year. Moleko also alleges that some teachers at the school are not adequately equipped to work with children who have special needs. “I would receive phone calls almost every day from a particular teacher telling me my child had a melt down, while I was out of the country. I took my child there because they specialise in children on the au tism spectrum,” she said. Another parent, who asked to be identified only as Lydia, said she had a similar experience. She explained that her daughter was diagnosed with autism at the age of three and was later enrolled at the same centre. “A month or two after my daughter started there, I began asking questions about her progress. “Either I was ignored or only received a response three days later. When I asked for feedback within a reasonable time, about a day, the principal called me into her office like a child to be scolded and said I was the problem for asking too many questions,” she claims. Lydia told this newspaper that she felt justified in asking questions because she was paying about R7 100 per month for her daughter’s education. Both parents said they want the school to take accountability for what they believe is a failure to provide the support and education their children re quired and promised. “A new manager, speech therapist, and occupa tional therapist are needed because this is where the biggest problems come from. These individuals are ruining the potential of this school and the future of each autistic child at this school,” said Lydia as the concerned parent. They further claim that the situation has caused trauma for many parents who trusted the school with the development of their children. On the contrary, the principal of the centre, Dr Marinda Raubenheimer, has denied the allegations. She emphasised that the well-being and develop ment of the children at Blaze remains a top priority. “On a daily basis, our staff go beyond what is re quired of them to ensure the centre’s objectives are achieved, and the children are accommodated and cared for in a happy and stable environment,” she said. Dr Raubenheimer also rejected claims that some staff members are not properly equipped to work with children with special needs. “Our staff complement is experienced in working with special needs children and the unique challeng es they face daily. They are dedicated to guiding and supporting the development required by these chil dren. I deny that our staff is not equipped to work with our children.” Raubenheimer added that the centre encourages parents to reopen communication channels so that concerns can be addressed in the best interests of the children. Meanwhile, Charmaine Thaele, a mother to a 13-year-old autistic son, says that it is very hard to find a school for a child with autism, as they have to go through a long process and still be put on a waiting list. “It’s been tough, it still is difficult, I’m unemployed, and there are no schools in Qwa Qwa, which is a huge challenge, only Centers. “There is a process that one has to go through, which involves registering through the department of education, where your child must be assessed by an occupational therapist, then the department’s thera pist, only then they then place your child on a waiting list if he is a candidate for the school they feel match es his needs,” said the distraught mother. She further added that the process takes years be cause these special schools that are subsidised by the government are limited. Thaele says she began the process of registering her son two years ago, and they are still waiting for her son to find placement. “We started the process in 2024. We did everything, still waiting to be called by the school, bear in mind he is still growing, and my fear is when they finally respond, he will be at school leaving age, which is 16. “My son is currently 13, turning 14, and is non-ver bal, so u can only imagine the challenges he faces. As for private institutions, yes, they are available, but cost an arm and a leg,” she added. In an attempt to fight for the rights of children and adults with autism to receive the services they de serve, Thaele runs an organisation called Still I Rise Foun dation, which focuses on stimulation and entertain ment for autistic kids and those who have various disabilities.

